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HELSEVEL-Gode og effektive helse-, omsorgs- og velferdstjenester

Individualized Digital DEcision Assist System (IDDEAS) for the diagnosis and management of mental&behavior disorders in children&adolescent

Alternative title: IDDEAS

Awarded: NOK 10.0 mill.

Computer technology is already widely used in the treatment, diagnosis and prevention of somatic disorders. Unfortunately, genetic and/or biological markers do not easily identify mental disorders and the same treatment does not necessarily work for all patients with the same diagnosis. This has been a challenge in developing a web based decision support system for children and adolescents with mental disorders. We want to change this through IDDEAS (Individual Digital Decision Assist System), an innovation project for the public sector. Clinical Decision support systems aims to give support to health care workers. Through readily accessible information about diagnostics, treatment and prevention, based on earlier research and/or cases one can save a lot of time and resources through eliminating unnecessary testing and avoiding potentially dangerous complications. Over the past few decades, large amounts of information about children and adolescents within mental healthcare has been gathered systematically in Norway, through BUPdata. Unfortunately, this data has not yet been used for the benefit of the patients. We want to use this information, combined with knowledge from the clinics and local as well as national guidelines to develop a web based system that will support local service providers. Disorders in child and adolescent psychiatry is common all over the country, it is also costly and have a long term impact. IDDEAS will support treatment and prevention of mental health disorders in children and adolescents and through this increase the quality, knowledge and effectiveness in association of Child and Adolescent Mental Health Clinics (BUP). This support system will yield benefits for the society as well as the individual patient and their family. Early intervention and diagnosis will better the patient's quality of life and lower costs for patients and society through the prevention of accidents, chronic illness, psychosocial- and health problems. Advances in technology may offer a solution to this problem with clinical decision support systems (CDSS) that are designed to help professionals make sound clinical decisions in real time. These tools are already being utilized for diagnosing and treatment of somatic disorders, but also being developed further to help children and adolescents who present to mental health services. However, the majority of these tools are developed in the USA and are designed to meet health system needs and challenges. You can read more about CDSS in Koposov & other IDDEAS writers' article (2017): "Clinical decision support systems in child and adolescent psychiatry: a systematic review". The Norwegian University of Science and Technology (NTNU) is responsible for IDDEAS and has a close collaboration with Central Norway Regional Health Authority (HMN-RHF), HUNT Cloud, VIVIT AS, Norwegian union for Children and Adolescents Mental Health (N-BUP), Regional Centre for Child and Youth Mental Health and Child Welfare - North (RKBU Nord), The Arctic University of Norway (UIT) and the Norwegian health register (NPR - Health Directorate). 2021 was another busy year for IDDEAS. The IDDEAS Consortium collaborated with clinicians on testing the IDDEAS Clinical Decision Support System. In 2021 this happened virtually and in person, including at the N-BUP Leaders Conference in Narvik, in October, 2021, as well as during a dialogue meeting held at the Nic Waals Institute, University Hospital, Oslo, in December, 2021. In addition, to continuing working on big BUPdata, the IDDEAS Consortium also received a new grant from Samarbeidsorganet, ?Data-driven decision aids for Child and Adolescent Mental health in the Health Platform.? The IDDEAS Consortium is very proud to report collaboration with several service-user organizations, resulting in a joint presentation at the virtual American Academy of Child and Adolescent Psychiatry (AACAP) meeting, and a peer-reviewed publication. Furthermore, in 2021 the IDDEAS Consortium expanded its network, including collaboration with Helse Vest IKT, as well as partners in Germany (Aachen University). The IDDEAS Consortium also held their first physical meeting in December 2021, in Oslo, Norway.

15 years ago Norway was in a leading position with the National Association of Child and Adolescent Mental Health Clinics (N-BUP) pioneering design, development and ownership of the original advanced multidisciplinary EHR (electronic health record) BUPData. Over the years unique, rich datasets were collected in Child and Adolescent Mental Health Clinics across Norway. Sadly, these unique data sets have not been used to improve care for service users, even though, in the recent years the use of computers expanded well beyond just storing patients data. IDDEAS (Individualized Digital DEcision Assist System) will integrate evidence-based clinical knowledge and practice data (collected over the past 15 years) to create a dataset that can be used by a newly developed medical decision support engine; this will allow for the creation of clinical decision models for the prevention, diagnosis and treatment of child and adolescent mental disorders. IDDEAS will increase service efficiency by making collected unique health data sets work for patients by supporting clinicians decisions and improve quality of services by bringing evidenced-based expertise directly to the examination room. IDDEAS innovation with LEaP (Local, Early, and Precise) model will change clinical practice by making the highest levels of knowledge available to local service providers early in patient care. In addition, IDDEAS will build a new arena of cooperation by bringing together service providers, researchers,managers, IT specialists, service users and international partners from the leading EU and USA institutions. And finaly IDDEAS will make services more useful and user friendly by ensuring timely recognition of mental health disorder at the "front door" while also ensuring greater participation and improved transparency for patients and families in clinical decision-making.

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HELSEVEL-Gode og effektive helse-, omsorgs- og velferdstjenester